Dementia: Understand Together

Standing together for people living with dementia

“Life doesn’t end when dementia begins.”

Dementia: Understand Together is a public support, awareness, and information programme that was launched in Ireland in 2016. The aim of the programme is to inspire people from across society to stand together with the half a million people whose families have been affected by dementia.

This includes inspiring individuals, businesses, service providers, and community groups to take action. The goal is to create communities where people with dementia and their families are respected, supported, and connected.

Raising awareness and taking action

Every year, over 4,000 people in Ireland develop dementia—that’s over 11 people each day. Behind the numbers, there are mothers, fathers, brothers, sisters, husbands, wives, neighbours, colleagues, and friends.

What is dementia?

Dementia is a degenerative neurological condition that deeply affects not only those diagnosed but also the lives of people who care for them.

Dementia develops when diseases damage the nerve cells in the brain.

Common symptoms include:

difficulties with thinking, language, and problem-solving,
difficulties in carrying out everyday tasks,
memory loss,
changes in mood and behaviour.

Recognising dementia symptoms early can help families prepare for changes and seek appropriate support.

The impact of fear and stigma

When it comes to our wellbeing, other people matter. There is a certain amount of fear and stigma that surrounds dementia, and this can often prevent people from seeking help or telling others about their diagnosis.

Fear and stigma can also mean that we stop meeting or talking to friends and neighbours who have been diagnosed with dementia. This exclusion makes it harder for people with dementia to stay connected and involved in their communities.

It doesn’t have to be like this. Below are small, practical steps to help build a more inclusive and supportive environment:

1. See the person, not the dementia

The diagnosis of dementia is life changing, but it does not define a person. That is why it is important that you don’t lose sight of the person and who they fundamentally are. Don’t treat someone differently because of the diagnosis.

2. Talk about dementia

Communication is a powerful tool. You can raise dementia awareness and engage people in conversations to help challenge stereotypes and negative attitudes.

The more people know about the condition and how they can support people with dementia and their families, the greater the impact will be.

3. Ask how you can help

Imagine what a day for dementia patients and their families is like and how this simple question could transform it.

Only by asking will you find out how you can be of support. You may be surprised that it is the little things that make a big difference.

4. Stay in touch

Relationships are important to everyone in life. The same applies to those diagnosed with dementia and their families.

Think about how you engaged before the diagnosis and how you engage now. Your relationship does not need to end because a person has developed dementia.

5. Support hobbies and interests

Dementia does not mean someone must stop doing the things they love, but as time goes on, they may need support to continue to do these things.

Do not underestimate the difference you can make. Your encouragement can bring joy and preserve a sense of purpose.

6. Ensure spaces and services are accessible

Put yourself in their shoes. See your service or space through the eyes of someone with dementia. This helps you understand their challenges when using services or accessing spaces. It may also change your attitude towards that person or what you do as a result.

Sticking to familiar routines can also provide comfort and stability for people with dementia. Establishing structure can reduce confusion, which is why recognising the benefits of routine is essential in daily care.

Building inclusive communities

One small action can make a big difference to the quality of life of people with dementia and their families.

Many individuals, businesses and organisations are already taking action to create understanding and inclusive communities where people with dementia and their loved ones are respected, supported and included.

You can be part of this effort. Find out more about how you can take action and the support available here.